Building upon the theory of social representations (Moscovici, 1961/2008) and employing the dialogical approach (Marková, 2003) and the concept of social object of representation (Wolter, 2009), in this paper we examine the specificity of haemophilia as a social object of representation and the social representations of the carers regarding this bleeding disorder4. The data were collected from 30 semi-standardized interviews with carers from seven countries (Italy, UK, USA, Algeria, Brazil, France and Germany)5. Interviews were treated as social life stories and the thematic narrative perspective (cf Laszlo, 1997; Murray, 1997, 2002; Riessman, 2008) was applied in the analysis of the data6. As haemophilia is rare, inherited chronic illness, we were interested to explore the process of construction and re-construction of social representation, taking into consideration the impact of three major elements – knowledge, everyday visibility and lived experience.